All posts by erikhom@aol.com

Taking a Vacation from Breast Cancer

“A rested mind will allow for a stronger fight”

I am finally back from work travel. It is a relief to be back by my wife’s side.  While I was gone for three days we started to get a clearer picture of our timeline.  We have rearranged our lives to take a family vacation this week and when we get back we have three appointments:

  1. MRI
  2. Plastic Surgeon
  3. Genetic Testing

My goal is to keep my wife’s mind off of the cancer as best we can by turning off her cell phone and stopping the emails.  We did also get our surgery date down to the 9th of September.  The kids will be back in school and she will have more time to rest.

We’ve taken a couple steps to tell our eldest child (8) more about mommy’s breast cancer so that he will take it easy around her more to get used to not asking his mother for everything.  He has been more scientific about it than we expected and has taken a leadership role in instructing his younger sister (6) that they need to ask dad for things more often.

My wife still is not relaxing as much as she should. I sense her overtalking and waking up with a sore throat.  Her mind is racing and thus it is my hope that taking a family vacation will be a good distraction for a few days.

Day 11 – Being Away is Not Easy (A loving Fight against Breast Cancer)

This time absence does not make the heart grow fonder.

My wife and i always used to say that absence makes the heart grow fonder and that is true.  We spent 10 years courting each other in a long distance relationship where we spend most of the time, including our last two years before our wedding, in separate cities.

That was 14 years ago and spending time away from each other since then has never been easy.  I’m not sure how hard it is for my wife for me to be away, but it is killing me to be away.  I find it hard to concentrate when I feel like I should be there with her.  I know that there is nothing I can physically do to help but it still hurts that my soulmate is alone at a very difficult time in our lives.  i just don’t want her to be hurt anymore.  I don’t want her to run into any more barriers without me.

I don’t know how spouses or partners deal with this.  I guess that is really why I write this blog.  It is for us but more for me to talk about it when there is nobody else.  It is a way to express my sorrow for my wife without letting her know how I am hurting  and knowing that at I am still a rock for her.

What is it about breast cancer that makes this so different from other cancers?  Is it the fact that it is located in a very external part of your body?  The fact that it affects so many women?  The fact that it has no age discrimination?   Whatever it is, I think it seems like more of a personal cancer to almost everyone as we almost all know someone who has had to fight breast cancer.

In case I haven’t said it before.  Here are the facts I know:

The cancer is 12mm in my wife’s right breast at about 8 o’clock..  The physician says a lumpectomy is a possibility but we are leaning toward a bilateral mastectomy with a skin sparing reconstruction.  My wife seems to be in good spirits knowing that doctors currently believe it is stage 1 although there is some swelling in nodes under both armpits.  All other signs seem positive as she is okay for hormone therapy, etc.

Hotel On Rivington- New York

THE HOTEL ON RIVINGTON (THOR)
107 Rivington St.
New York, NY 10002
212-475-2600
Cost: $$$$
Hotel Decor: 95 (some aging, but overall THOR is stunning if you like boutique urban design)
Hotel Amenities: 90 (Don’t miss the summer roof deck parties.  Ask and research with the staff)
Neighborhood Scene: 90 (Cool chic.  Relaxed. Not something for everyone)
Miscellaneous: 98 (So unique in nature you won’t stay in another hotel like it in the US)
Overall Wow Factor: 90 (some aging of the hotel and service) 
The Hotel on Rivington (www.hotelonrivington.com) lived up to all the hype for me.  Located on the Lower East Side, it is a great escape away from all the hustle and bustle of Midtown Manhattan.  The often unexplored LES offers a vibrant nightlife with clubs, restaurants and some unique shopping.  The hotel is a sleek contrast to the rest of the neighborhood and really does stick out like a sore thumb.

Despite all my usual research I was not quite ready for the entrance to the hotel with it’s white modern sculpture entrance which felt like entering the Matterhorn at Disneyland.  Secondly, I wasn’t ready to find that the reception desk was on the 2nd floor.  I was so eager to see my room ( a corner with a glass shower) that I didn’t even bother to check out the lobby until I checked out.  When you get to your floor, the halls are black with no windows and you just follow the glow of the red light to your room.The lack of lighting adds to the shock factor when you enter your room with floor to ceiling windows that offers sweeping views of the LES bridges, with Delancey St. below and Wall Street in the distance.  The room fit the images of the photos on the website except my bathroom was black tiled compared to the yellow one I saw on the site.   For all you exhibitionists out there, it should be noted that the glass shower uses frosted glass so there is really no chance of being seen from the street below.The muted cauliflower blue and brown colors fit well with the design of the room complete with automatic sliding curtains, free wi-fi, balcony and flatscreen TV.  This is definitely a rock and rollers hotel.  For those who like celebrity watching (raising my hand) we spotted Sarah Michelle-Gellar here as she was having a “wrap Party” for her new movie.The Hotel on Rivington towers over the LES.  Once we dropped our items in the closet we explored the great stores for boutique clothing, found a restaurant for the evening (Tre) and scoped out restaurant row (Clinton St.).  Although the hotel has its own restaurant, Thor, we wanted to escape from the touristy feel and have a nice casual dinner in the neighborhood.  Tre is located just around the corner, one block north of the hotel and offers a quiet scene in a shotgun style restaurant with lots of good people watching as well as a great place to eaves-drop on the interesting lives of the people who live in this eclectic neighborhood.  We had the prix fixe meal which was a little salty but that wasn’t why we went there.  The interesting site was the tall British gal in her white hostess dress.

Thor Entrance
The low profile bed
The low profile bed
At one point this striking gal snapped on some rubber gloves, threw a large piece of prosciutto on the table and sliced it right there fresh for the patrons.  It was a scene that you’d have to have seen just to visualize the oddity.  Afterwards, we bar hopped, checked out the “Livingroom” , a small live music joint and then back to Thor for a drink.
Looking toward the Battery
Looking toward the Battery

We left our shades open and got up early the next morning for breakfast at the Clinton St. Bakery.  I’ll discuss that at another time, but located three blocks from the hotel on Clinton and Houston, you will find the best blueberry pancakes (okay Martha Stewart discovered them first) that are just one more reason to stay down in the LES.

I highly recommend the Hotel on Rivington.  We didn’t get to truly experience the hotel, but the small taste that we got was enough to get us to come back to the hotel and its great neighborhood.  The furniture , the interior design and the ambiance were spot on.

Gathering Inspiration Daily in a Fight Against Breast Cancer

Everyday I’m reminded of another reason why I love you so much”

I think one of the pieces of the healing process during the journey from diagnosis to surgery to recovery and treatment is hearing the stories of so many other women.  Amazingly enough I still haven’t heard a story that I felt is exactly like my wife’s.    Today a woman who is helping another woman in her recovery told me about her patient who is getting tattoos on her nipples after having a bilateral mastectomy and has been trying to find the right tattoo artist for the procedure coontacted me via this blog.  I responded to tell her that my wife’s situation was slightly different.

As I’ve been told, my wife will be able to maintain her nipples.  This is called a skin saving procedure or something like that.  Frankly when they told us this was an option during the counseling I didn’t react.  I wasn’t even sure what was the appropriate reaction for a husband in that moment.  It has been a couple days since then and all I can say is that I truly married my wife for the woman that she is.  Her external beauty would not be there if her inner light wasn’t so bright.  If she needs her breasts reconstructed to make her feel good, and that means it will enable her to keep up the spirit I fell in love with, then I will take whatever she wants.

I know there are many women who get bilateral mastectomies with different consequences:  Some don’t get reconstructive surgery at all, some decide to delay or can’t get reconstructive until later, some have reconstructive where they lose their nipples and have to have them tattooed on, some just never get them tattooed on, or in the case of my wife (this is the option that has been discussed to this point), she will have immediate reconstructive without losing her nipples.  This was an option I didn’t even know existed at the time where we walked into the doctor’s office.  They say that no matter what there is some loss of feeling.

But like I said, there are so many variables that breast cancer can throw at you which will change the possible opportunities.  My mother-in-law decided to have a double mastectomy (cancer had only been found in one breast) and never had reconstruction.  My own mother decided against a lumpectomy and had just a unilateral mastectomy without reconstruction.  My wife had the otpion of just a lumpectomy.  Family history, age and actually my wife’s current breast size had a large impact in the choice she/we have made.

We are going to take a break for a little family vacation before resuming with meetings with the plastic surgeon, getting the MRI and having some genetic testing done.  Still a while to go so a little recharge of batteries will be needed.

As for me, I’m finding myself still needing to talk about my wife with my own friends.  It helps me to talk about it and fortunately my co-workers and friends have been so supportive.  Telling them how my wife is fighting hard also makes them feel good to.  They are my inspiration.  Their wishes and prayers are not taken for granted and the fact that they are doing this for my wife makes me even more inspired to work harder for her and to show her my love will never waver.

Fighting Cancer is a Marathon not a Sprint

“Please pace yourself.  This is just the calm before the storm”

My wife has so much spirit right now that I think she feels ready to take on the world.  The truth is I think she needs to save that inner strength and fortitude.  We have yet to even visit with the breast surgeon or had the MRI.

One of the hard things to do is tell people you have breast cancer.  It has been my job to do that but I think the best strategy is to not tell people until you have all the facts and maybe not until after.  Right now everyone wants to help when we don’t need their help.  We’ll need their help after the surgery.  We decided to not even mention it to other parents in our children’s class.

Although that is a good plan it can backfire.  My “superhuman” wife decided to run a milion errands even taking the kids with her to the hospital to pick up slides and arrange a few more appointments.  It was a good idea to get them used to the sight of a pleasant hospital surrounding.  She then decided to clean the house and got caught while washing her car but a neighbor kid who invited himself into our home.  This kid is really nice but way too much energy and my wife should have just put her foot down and told him to go home.  Although my wife said it was fine, I could see her body was tired at the end of the day, she was still feeling short of breath from being tired, and I was not coming home to the dynamo wife I had been seeing the past few days.

We discussed the need for her to pace herself and she agreed.  We are beginning to set out a plan through the holidays and it will keep us focused on the future.  This might just be longer than a marathon.  Yes, the Olympics start tomorrow.

In Breast Cancer I have Found Strength (ALF)

” Your breast cancer has changed my actions for the positive”

It is horrible to say that my wife’s cancer had to happen to make me see the light, but with her illness on my mind it has helped me to cope through some of the more tense and trying times at work over the last couple of weeks.

My wife has noticed how much my worrying has taken its toll on me.  I guess I haven’t been sleeping well at night as I’ve just felt like I have no energy.  I have a business trip coming up and I am extremely worried to leave her and the kids for 3 days.  She says she’ll be alright.  I hope so.

Today I would have normally burst out in anger at a colleague for a bonehead move, but I am beyond that right now.  There is nothing more important in my life than my wife’s fight agains this disease that I need to pick a battle over a business matter that I shouldn’t have to worry about in the first place.  I’m finding strength in other places like my workouts where my sore legs don’t bother me and I just power through the pain as my mind tunes in to other thoughts.

My wife is still in a fragile place as she hears from her mother how saddened her uncle was to hear the news.  I think she is just moved to know that people care so much.  It was another good cry to show us both that this is real and we are living this life event even if we find some distraction during the day.

I’ve definitely seen some renewed energy and passion in my wife as she is attacking some tasks and getting ready for one of the biggest days in our lives.  I can only show her how much I support her by showing that same drive and passion.

Day 7 – Inspiration

“You are my inspiration.  Now you have the opportunity to inspire others not only with your actions and words, but your positive attitude.”

I woke up this morning and stared at my wife who had a beautiful smile on her face although she was still asleep.  Here is someone who is going to lose a body part, have major surgery, and is currently living with a major disease inside of her and she looked so peaceful.  I’m so concerned about her yet believe she has found a good place right now where she can function and feel good about her situation.

The reality though is she faces major surgery and months of recovery which might disrupt her life a bit. 

My wife now joins the legion of survivors of cancer or those living with cancer who inspire us all.  She’s not Lance Armstrong, Sheryl Crow or Scott Hamilton, but those who will learn of her plight ad see how she handles herself will be inspired by her just as I am.  I find that even those I’ve spoken to already are amazed by her spirit to continue to move forward.  One friend today said, “You really want to have a playdate at the pool with our kids?”  I think she was amazed to hear how my wife, one day after finding out her fate, was ready to move forward and keep on living and keeping her life on a normal path.

Every day we hear amazing stories and are inspired by celebrities to every day people in our lives.  My wife interestingly enough never folows the Lance Armstrong  type sotires as much as I do.  I’m always moved by people who take adversity and not only recover to where they were before, but make themselves better.  In her own litle way, I think my wife just might be one of those people.  When you live closely with someone for 20 years you sometimes forget who it is that is standing beside you and why you fell in love with them in the first place.

Yesterday at the doctor’s office when I fell asleep after being exhausted from all the reading and reasearch i awoke to find her holding my hand and patting it as if to tell me that everything would be okay.  Maybe I needed reassurance from her that it was going to be alright.  The jury is still out, but in inspiration we find a pot of hope that is glowing in gold.

Day 6 – Visiting the Surgeon

“Today like every day is a great day with you.  Seeing you smile with tears in your eyes makes me happy”

If you don’t like waits, this was not for you.  We had a 1pm appt and showed up 15 minutes early.  We didn’t leave until 3:30pm but it was one of the most educational 2 and half hours I’ve had in a while.

For all the Significant Others out there, always go with your spouse to the visit.  Waiting there alone was bad enough with my wife, so I can’t imagine sitting in that room alone.  I think at one point there was a 40 minute wait and I fell asleep while my wife ran through pamphlets.  All of the waiting had me exhausted and it finally caught up with me I guess.  I haven’t been sleeping well.  Worrying about my wife when she wasn’t looking was killing me.  The power nap really helped.

My wife wanted me to take notes as she wanted me to make sure I jotted down the good things as she heard that you only tend to listen to the bad things. My wife’s doctor was also my mother’s surgeon.  While we sat there I read the bio of a young hot shot cosmetic surgeon and was thoroughly impressed, but this surgeon was more comforting and real.  She had a great calming effect and she made me feel good knowing that she saved my mother and is going to save my wife.

My wife’s OB/GYN has to also be commended for detecting her cancer.  “Your OB/GYN did a great job” seems to be the common thread we are hearing.   I’ve never been someone who cared about their wife’s OB/GYN, but I appreciate her more than ever.  I wrote her an email tonight just to say thanks.  How can I ever repay her.

It turns out we were very prepared for what we needed to know.  My wife and I didn’t even have to glance at each other while the doctor told us what it appears her prognosis would be.  I think all this thinking had us thinking the worst.  While the news wasn’t the greatest, I think it brought a great sense of relief for ua to finally know what it is, what our population of statistics tells us that we have to deal with, and what our timing will be.

We had a pretty good idea of what our going in thought would be and after her surgeon told her that a simple lumpectomy might just be fine with some radiation, my wife told her what she really wanted.  A double mastectomy with reconstruction.  This is no laughing matter, but it is not my choice and is all up to my wife.  She knows what she wants and if this means possibly not ever having to deal with this kind of cancer again, that is just alright with me.

Again, I learned so much about the process and preocedures which will help us get through this.  Now we will do a lot more waiting.  Yes, there will be another month before the actual surgery.  There is no danger of the cancer getting worse so the best thing to do is go on living our lives.  We need to take care of our business right now and prepare for the best and worst.

Ironically my wife did hear all the positive and it was me who heard the negatives.  I tempered her enthusiasm a bit.  This is not a print but a marathon.  We will defnitely have some tough days ahead and I want us to be prepared for that.

We started to tell our 6 and 9 year old about mommy’s lump but we’ll have to do it again another time.  We can’t be afraid to use the word cancer.  We need to tell our children about mommy and let them hear it from us rather than someone else.  Again, our goal is to get our children smarter and more mature about life matters.

In the end, I was happy to see a smile on my wife’s face that I hadn’t seen for months.  It made me cry. I’m so happy for her.  I married the right woman.

Day 5 (TLF)

“Tomorrow will be like today and the day before that no matter what we hear.  You will still have the same dreams, hopes and fears.”

Tomorrow is the day we’ve been waiting for for 5 days.  We will visit with the oncologist and hear a preliminary prognosis for treatment.  I can feel all the anxiety and anticipation that my wife feels.  If they give us REALLY bad news, the question is why did we have to wait 5 days?  If it is within the realm of what we’ve been expecting, then the wait and anticipation will still heighten.

I’m just trying to keeep my wife calm and distracted.  Trying to do everday things as well as things that she’d like to do.  She’s had some anxiety and her doctor prescribed some anxiety medicine.  She keeps saying she hopes it hasn’t spread to her lungs because she’s feeking short of breath and I keep telling her that she’s just being nervous (I hope I’m right).

A bon voyage party for a friend, brunch with my mother and the kids and lots of activities seemed to wear her out today.  She did confide in me that she is going to dream harder and start to express desires about what she really wants for herself.  I told her that dreaming is free and fun.  Don’t stop anyone from dreaming.  We’ll start talking about them soon. 

Today we went through an exercise I created.  I think it did the right thing.  I had her tell me the top 10 outcomes or benefits of this life event.  I also told her to name 10 fears or negative outcomes.  I did the same as I wanted to see how she and I were either in sync or differed.  After 10 minutes she came to me and said, “I can’t name 10 negatives.  I guess that is a good thing”.  She smiled and I hugged her.  That is what I was thinking.  I told her the positives outweighed the negatives by far.  Secondly, we discussed the negatives and the reasons why those fears and negatives could be easily dealth with.  I gave her some good thoughts to laugh at. 

Below are the results of our survey.  I’m so glad I was able to help her realize that we were not only in this together and that I cared, but that there was a lot of upside:

Her Positives:

  1. Appreciate life more
  2. Appreciate and do more with kids and spouse
  3. get more proportinate and perky breasts
  4. Prevent a recurrence of canter
  5. Get a better handle of life’s obstacels
  6. Learn more about self that will benefit others
  7. Will develop knowledge to help others with adversity
  8. Hopefully be able to help our dauughter some day with a cure
  9. My kids will become dtronger people
  10. I can do things in my life I wouldn’t have done because of this (travel, etc.)

My positives:

  1. No more complaints about back pain or heavy chest feeling
  2. I might gain a golf partner or running partner
  3. kids become stronger and more aware of things
  4. Easier to buy her clothes
  5. She’ll embrace life and be even more fiercely stronger about life
  6. Greater physical self confidence
  7. We will have a tighter and stronger overall family bond
  8. We”ll truly kow who our firends are
  9. We’re attacking cancer now while we are strong and not weak
  10. Looks like no more big family travel during the holidays

Her Negatives:

  1. This could be more complicated than we think
  2. Still a chance of recurrence
  3. Difficult to deal with everyday life while getting treatment
  4. Cannot get optimal breast reconstruction to look normal
  5. Like #2 I get a life-threatening recurrence

His Negatives:

  1. Short term depression
  2. Painful recovery
  3. Possible hair loss
  4. Loss of drive in life
  5. Children are negatively impacted
  6. Some plans are missed or interrupted
  7. Fear of death
  8. Insurance rejection or complications
  9. Concern leaving her alone
  10. Physical scarring that she is not happy with

Again, all these positives and negatives will still be there tomorrow,

A Loving Fight – Day 4

“You are more beautiful outside and stronger inside than ever before”

It is so hard to tell that to your wife when she is fighting the anxiety of being diagnosed with breast cancer.  The bouts of crying and the number of well-wishes she is receiving is probably overwhelming her.  The fact of the matter is that she is stronger and more beautiful than ever.  Maybe my eyes are welling up with tears as and I’m seeing a glow that I haven’t seen in 20 years, but my wife has never looked better.

She had a great day today getting out and continuing to do what she loves and then spending time with her family.  My mother graciously took the kids and we went out for a movie, dinner and alone time.  It was a chick flick that I would have rather waited for on DVD, but we went and I let her have her movie.  It was all about girl power and it made her cry.  It was her first crying fit in a couple days.  She really need it.

Distraction is the name of the game and keeping her busy is the most improtant thing I can do to keep her distracted.  We accomplished quite a bit today and she was fine until that movie got her back to thinking about the cancer again.  This is a strong woman who is used to fighting physically but this is not something she can beat.  Fate has dealt her a blow and now we must wait for the oncologists to help her set her plan.

Tomorrow will be a better day I’m sure.