Tag Archives: cancer

Thanksgiving – Remembering to be Thankful

When you’re down on your luck, you gotta do it,” –
Andrew W.K.’s feel-good song Got to Do It
 
After my wife found she had cancer a couple years ago, Thanksgiving took a different meaning for me.  I felt guilty that it took her illness for me to appreciate the holiday for what it is, but I do now take the time to remind myself and my kids about how thankful we should be at this time of year for what we have rather than next month when people start wishing for what they don’t have.  Tonight I sat on my brother’s couch after dinner, half napping as the tryptophan kicked in.  Fighting the lure of a nap, I picked up the recent Sports Illustrated and started to read an article about Jill Costello, a local girl from San Francisco with a big heart who graduated from the University of California at Berkeley this past Spring and as the coxswain for the women’s rowing team, led them to second place in the National Championships.
Jill Costello - former Cal rowing star

I had read briefly about Jill back in May in the local newspaper after I heard about her through the UCSF Medical Cancer newsletter that my wife gets. Jill had been diagnosed with stage IV lung cancer although she did not smoke.

Although I hadn’t kept up with her story, as I read through the article I felt myself tearing up.  I knew what was coming.  I looked over at my wife smiling and laughing with my family and felt truly blessed.

Thanksgiving is truly THE family holiday of the year.  It isn’t long enough for most people to travel far  away.  It isn’t about presents or religion.  It is about celebrating your place and those around you and being thankful  for what you have.  Sometimes hearing stories about the loss of others who really are special people reminds me of this.

I want to give a special thanks to my friend Donald Wilhelm who we lost this year.  A good guy who inspired many and left us too soon.  In the article in Sports Illustrated: The Courage of Jill Costello, we read a great story about another inspiring person who can teach us to appreciate what we have today.  Although the article did not mention it, Jill lost her battle after graduation, but her strength inspired many to give more than you receive.

As her coach so succinctly put it at Jill’s funeral, “There are givers and there are takers, and you want to be more giver than taker. She never complained. She gave far more than she ever took. She was an inspiration to all of us. I hope when we face something as daunting as this, we can show some of the courage that she showed.”

Remember or Move On?

This Time's A Charm

It has been a while since I posted here.  It doesn’t mean I haven’t been thinking about what to post.  I’ve been thinking, but I’ve also been living.  Right after my last post, my friend Donald passed after losing his battle with cancer.  What do you say when the best fighter loses their fight?  I told him once I felt guilty that since my wife was feeling okay that I felt like maybe it was time to move on.  I respected people like him, Lance Armstrong and others who continue to raise awareness and also inspire others in such a public way.  He told me there is no guilt and no shame. 

I’ve always been taught not to forget your past.  Don’t forget where you’ve come from.  Remember the journey and all the people that helped you along the way.  The cancer that my wife had and all the people who helped us won’t be forgotten.  They are special people,  but when the memory is an unplesant one, it is nice to not have to think about it.  As it was my wife’s illness, I think I take her lead.  She is moving on and I can tell would rather not talk about it if she can.

The problem is the disease still won’t go away.  You can’t escape it.  As I mentioned, right after my last post Donald, Wilhelm died, then my wife’s good friend found out she has breast cancer and two more relatives admitted that they have it as well. 

So maybe we can’t move on.  You can live, but you have to live with those memories and help inspire others.  We don’t have to inspire others by helping them directly with their fight.  You can help by showing them how to keep moving, keep breathing, keep smiling. 

And as a message to Amy, the wife of Donald, you will find your way to move on.  Do not feel as though you need to prolong his message.  It will always be there……”don’t ever give up.”

The New Decade: Looking Forward and Barely Over our Shoulder

The slower we move the faster we die.   Make no mistake, moving is living.

George Clooney, Up in the Air

It’s irnoic that line is the one that will be remembered most from the first big movie in 2010 or in this decade.  Maybe that is why I’m running so much these days.

The new decade is here and what a decade the last one was.  It is easy to look just back at 2009, but that would be a short-sighted and very depressing one.  Wrought with health issues and a world economic crisis, even looking back 2 years might not even be what we need to be able to look back on the past decade with perspective.  As I ran down 2009 through a series of runs through the Streets of San Francisco I tried to reflect a little on the past year, but kept pulling more memories out .  As I looked farther back, I began to realize that I didn’t just need resolutions for the coming year (don’t like resolutions anyway).  I needed to look ahead to the whole next decade!   I haven’t written in a bit just because I wasn’t sure as to what to say as the thoughts kept flooding in.  “Just put it to paper and let the rhythm flow without thinking” (to paraphrase the words of the lead character in Finding Forrester).  So as I put my running shoes and headphones on and listened to my new favorite song, Good Life by One Republic, what I saw was a past that is shaping our future in new ways and some that we could never have imagined.

There’s so much to think about when looking back and trying to eliminate the macro-factors of societal changes and focus on only the things you really can control.  For me it was about family, health, work, and friends.  How can I proactively move towards making sure I better control these issues in the new decade.

In order to look ahead at the next decade and what it should look like for me, I found myself back in time in 1999 as we were selling our house and i was getting back into the venture business.  Yeah, remember the Y2K craze and how much were were going to have to evolve when the computers came crashing down?  It was a whole cottage industry for a doom and gloom that never came.  We’re still here though.  I think I had 3 jobs this past decade and hopefully won’t do that much switching in the next decade.  I would never have expected in 1999 that I would end up doing what I do today, but my current job is one I’ve been at longer than any before.  Is this my legacy?

Personally in 1999 I was a new dad in San Francisco wondering how I could move to a bigger place in the suburbs.  Well we did do that, but we moved back to San Francisco.  Not before we became ice cream moguls leaving a mark with a franchise in Marin County as well as purchasing another one in San Francisco.  Anyway, now I’m a seasoned dad with a 10 year old and a 7 year old.  So what does that mean?  At the end of this decade I will just about be an empty nester as my two kids will hopefully be off to college.  It doesn’t leave much time for  me to think about how to afford their education and prepare for how I will prepare for my retirement if something like that would ever exist for me.  If I thought my children dominated my life this past decade it will surely be a decade of building what will be a lifelong relationship.  Maybe I shouldn’t even mention retirement as it won’t happen until after 2020 for sure.

The past decade also came with health issues as well.  Losing a parent (which I could have predicted as my dad was already in poor health) was hard to take but reminded me of how important a parent-child relationship is and how fortunate I was to have my children meet their grandfather and develop a deep relationship with my own mother.  Emotional preparation for the potential loss of another grandparent in this decade would be  something I could easily see in my future.  Cancer was something I never would have expected to be part of the last decade.  In fact it was a large part with my mother and then followed by my wife and friends.  Bad Health is never something you really plan or prepare for.  I don’t know how much the next decade will be interrupted by health issues but age will not come without some aches and pains for sure.  I have already started preparing myself.  The last two years of training have built my stamina to a high level.  I maybe not as strong or fast as I used to be, but if not getting sick at all for the past 18 months is any indication, I’ve definitely been fortunate in keeping healthy and maybe if I just keep moving…..

I don’t need to write much about friends and extended family and my expectations there given some recent posts, but this past decade has been about revitalizing past relationships.  I only expect that to continue.  It seems to be a natural processs as you get older and start to reminisce about times gone by.  These are the people who will remind you about your past someday so its probably good to keep them close so that they remember it accurately.  For sure their memories are already declining, not to mention their deteriorating eye sight.  It just makes me wondering as the baby boomers will be moving into their 50s and 60s, will those people still be wanting to deal with small screens on their cell phones and buttons that don’t work well with arthritic fingers?  Remember that this decade started with us using PDAs with a stylus.  Now we just push things around with our thumbs.  Will everything be voice-activated over the next decade?  Will we see the first wave of brain cancer resulting from overuse of cell phones?

We now have a black President.  Will the next decade bring a female President?  An Asian President?  A Hispanic President? A Gay one?  Maybe 2 of those.  We talk about national security as getting tighter given the terrorism that has started in the US.  Is it possible this could get worse?  Will the idea of being “green” work.  What would people have thought if you used that term back in 1999?  They would have thought you wanted to be a vegetarian and were giving up meat.  For me all of this just heightens the urgency to show my kids parts of the world that they might never ever get the chance to see or at least the way they could see it today.  The world is changing rapidly.  How fast?  The eco-system even in the SF Bay area was so drastic that one minute the sea lions that inhabit our piers had peaked at over 2 thousand last November yet today there are about 6.  The plankton and the water temperatures have caused them all to move to areas up North where they can find more herring.  A migration that grew over a 20 year period just disappeared in a matter of months.  Will Alaska still be cold in 2020?  Will there still be arctic glaciers?

As I continue my running regimen I’m not running from the past but running toward the future.  It isn’t necessarily a bright one or even a better decade than the past.  It will have its own challenges and we can only prepare ourselves for what will be more of the same yet with more intensity.  Of course, we have a chance to shape our own path by planning it before the future comes and dictates our actions.

Perhaps while this decade might not mark the beginning of a new millenium that it might end up being much more important than the past decade  This may be the decade where we take control of our destiny and start to dictate what history will be.  Maybe Live Strong won’t be an attitude for fighting cancer, but to beat Father Time and prevent him from catching us.

For me the answer is to not prepare for the end, but prepare for the future.  Don’t look back too far, but just remember to keep looking forward so that what you left behind stays there and what you want to take with you in the future moves with you.  For me that is simple. 10 years from now I want to be standing there proudly with my wife at my side as we watch our son thrive in college as he prepares for the real world and a career of his choosing and our daughter moves off to college strongly independent such that her parents will know that she is prepared for that next stage of her life.  Me? I’ll be cleaning out their bedrooms figuring out how I can convert their rooms into my own 3D home theater and 24 hr. fitness club.

A Warm San Francisco Holiday To All

Happy Holidays
Happy Holidays

Happy Holidays Everyone,

Before everyone takes off on their vacations from their virtual world, I just thought I’d wish you all a very Merry Christmas, Hanukkah, Kwaanza, etc.  Please be safe if you are traveling this season!

As I pushed through the chilling temperatures and blustery winds of San Francisco during my run last night I kept reminding myself of those cold December nights I’ve spent in New York City, Chicago, and Pittsburgh.  Nothing will ever compare to those cold bitter nights when I wore long underwear under my wool suits and wondered why I left my “City by the Bay”. I do remember telling myself that I would remember those days so I would appreciate San Francisco that much more when I would eventually return.   Although cold, my run was dry and I ran down the festively lit shopping areas of Sacramento St, Fillmore St., California, and Clement St. distracting myself with the observations of the decorations people had in their windows.

While the glittery lights were dazzling and the quietness of the air still reminded me of how our economy is not quite back up to speed, the most warming images of my run were of the people. 

First, there was the elderly couple walking together with their arms around each other as they left their party at Spruce Restaurant (http://www.sprucesf.com). They stopped and kissed saying “I love you” and touching their foreheads together in the middle of the sidewalk as I dodged them.  It was a split second of our paths crossing but it was a beautiful image.

Second, there were the two inebriated young ladies in their short cocktail dresses stumbling out of the Elite Cafe (http://www.theelitecafe.com/) before crashing to the ground.  I say crashing because they fell backwards into me as I ran behind them.  Fortunately I caught one before she hit her head on one of the tables outside. They were inebriated because as the cabbie and I helped them to their feet, neither of them could pronounce their destination.  I laughed when she said they were going to New York.  A great guy, the cabbie, a little Frenchman in his beret and scruffy clothes had me and one of the waiters watch him as he helped one girl open her purse to find her address. She kissed his scruffy face as he pushed her back into the cab.  “Welcome to Christmas on the Barbary Coast”, he said as he tipped his cap to us while mentioning one of the many long-gone nicknames of San Francisco.  I think I ran a whole another mile before the whole incident washed behind me, turning towards home.  The cab driver reminded me of the kindness of people at this time of year.

As I passed by San Francisco’s only 24 hour Starbucks in Laurel Village (yes I love running by it at night just so that I can get a whiff of the caffeine aroma) a bunch of Fire Engine’s raced by me.  Looking for an alternate route, I followed their sirens.  A Portable Potty had been set ablaze nearby.  This has been the work of arsons as dozens have been set on fire over the last year.

Not wanting to end my run on a negative note, I continued on and started  to notice a pattern that is so familiar this time of year.  I had been seeing it over the a past week as cars and taxis pull up in front of homes and the dwellers come out to greet and hug a family member returning home.  The tears of joy and happiness really signify what this season is about and while the images weren’t exactly Norman Rockwell-esque, they told the story.  The story of family and friends coming together.  I even saw a soldier returning home a couple weeks ago in full gear as his mother screamed when she opened the door (adorned with a yellow ribbon).

All of these images (including the fiery portable toilet) told the story of 2009.  Maybe they weren’t my story, but they were nice ones.

2009 will be just that for me.  “A Nice One”.  I’ll definitely take that after 2008.  I needn’t look much further than 2008 to remember what was happening last year as my wife was recovering from her second surgery in 3 months and we scheduled ourselves for a very low key Christmas with only enough fanfare to keep our kid’s spirits high.  Just 365 days ago I sat by her bedside making sure she’d be okay just to get up and deal with Christmas.  While 2009 was no picnic, and we did deal with two more minor surgeries, life today compared to last year couldn’t be much better healthwise.

The holiday is often on its long tail as we’ve already had two family gatherings, a work party and a large bash at a friend’s home yet we are still 3 days shy of Christmas.  We still have two more family gatherings to go to.  Such is the life of the fragmented world and family.  As I sit here in my den, I know of local friends spending the holiday in Hawaii, Argentina, Spain, France, England, Italy & Brazil just to name those places not on this continent.  They all sound enticing…. the Champs Elysees on Christmas?  How magical does that sound!?

Well San Francisco is where we remain and where we will keep our hearts this Christmas!  No snow and no sand!  The image above is from  Sara Showalter, (www.sarashowalter.com) or @gidget on Twitter.  A great local artist, the image was used for our holiday card this year. If you are looking for an artist or photographer, I highly recommend her.  And the best thing about her?  She is a diehard San Francisco Giants fan!

Doing the Manly Thing

“Cancer is never just about the person who has it. At least it shouldn’t be. It’s about everyone around that person. Chris made a selfless decision and I love him dearly for it.”  – Stefanie Spielman about her husband Chris before she lost her battle with breast cancer.

Many of you may not know who Chris Spielman is, but he was an All-American linebacker from Ohio St. and NFL All-pro.  He also exemplified in my mind a great role model for all husbands out there when it comes to supporting your spouse.  It isn’t just that he is a celebrity that I give him credit for being a good husband.  I think he went beyond the call of duty as a co-survivor.  I copied the story below by Lisa Olson

Recently his wife passed.  What I really loved about this story is how he showed what co-survivorship is all about.  I‘ve attached a link here, but you can also just read this story below:

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by Lisa Olson 

When Chris Spielman suffered a brutal neck injury, he said overcoming it was a breeze compared to most everything his wife Stefanie had faced. When her hair started falling out, when clumps of it began landing on the floor and in their toddler’s hands, Chris decided to shave his own head, a soldier in solidarity. When it became apparent that more chemotherapy and a mastectomy — breast cancer’s evil twins — were high on Stefanie’s schedule, Chris bid a temporary farewell to the NFL, skipping an entire year so he could be with the woman he proposed to on the 18th hole of a Putt-Putt course.

None of the above should be considered exceptional behavior by husbands or partners forced to watch their loved one undergo treatment for cancer. But everything Chris did back in those gloomy days following his wife’s diagnosis was regarded as unusual and, in some parts, emasculating.

Stefanie Spielman, 42, died Thursday after a lengthy battle with breast cancer. Chris Spielman, the NFL and Ohio State star, was by her side, along with their four children, and while she deserves a thousand hosannas and a billion thanks for her work in raising millions over the years to combat the disease, it should be noted that he was quite the trailblazer.

When they met at a teen dance in their hometown of Massillon, Ohio, Chris was a high school stud who soon would be featured on the cover of a Wheaties box; his football journey continued at Ohio State, where his bone-crunching hits as an All-American linebacker became legendary. By the time Stefanie found a lump in her right breast during a routine self-exam, they had been married 10 years and he was deep into an NFL career. This was 1998, and let’s just say the world of sports was not as enlightened as it is now.

She was three months pregnant when she felt that lump, and later miscarried. Chris told her he wanted to skip his upcoming season with the Buffalo Bills so he could accompany her to doctor appointments, and hold her head when the chemo made her nauseous, and be a calming force as she underwent surgery to remove her breast. Eight stellar years with the Detroit Lions and another two with the Bills (he set a team and personal record in 1996 with 206 tackles) had given him much credibility with the football-crazed public, but how would they understand this kind of absence?

“Players just didn’t leave the game unless they were injured or retiring on their own terms,” Stefanie once told me at a fundraiser for Lance Armstrong’s Livestrong foundation. “It seemed so simple to me. Just tell the fans your wife has breast cancer. Who knows? Maybe it will have some kind of trickle-down effect. Maybe one fan will go home and say to his wife, ‘Honey, sweetheart, don’t forget to make that appointment for your mammogram.’

“Cancer is never just about the person who has it. At least it shouldn’t be. It’s about everyone around that person. Chris made a selfless decision and I love him dearly for it.”

He took the season off, shaved his head to match his wife’s beautiful bald dome and still there were the grumps in the Neanderthal section wondering why a Pro Bowl linebacker had to go and mess up their Sunday fun. When Stefanie’s treatment reached a manageable level, he returned to the NFL for the 1999 season, this time with the Cleveland Browns, but a second neck injury ended his NFL career.

“Nothing my body has gone through can begin to compare to what Stefanie deals with almost every day,” Chris once said. “She’s my hero.”

Stefanie’s plan, formed in the aftermath of her diagnosis, began on a small level, with a sign at Big Bear, the Spielman’s neighborhood grocery story, asking shoppers to please donate money to Ohio State’s James Cancer Hospital. A few thousand dollars, she said, would have made her delirious. Girl Scout troops and baseball teams and individuals and clubs from all across the community began offering their pennies, and within six months those pennies totaled $1 million.

The Stefanie Spielman Fund for Breast Cancer Research, along with the Stefanie’s Champions awards, has since raised more than $6.5 million for the cause. She survived four bouts with cancer before a fifth, and final, recurrence in the spring left her wheelchair-bound. She accompanied Chris to Ohio State’s season opener against Navy, when he was honored at halftime for his induction into the College Football Hall of Fame. Against a backdrop where Chris once played to phenomenal roars, the loudest applause, by far, came when Stefanie was introduced.

And in a cruel coincidence, on one of her last days came a report from a federal task force saying women should delay mammograms until they’re 50, 10 years later than the medical community has traditionally recommended. Not to make the Neanderthals in the balcony squeamish, but if you, the sports fan, have a mother, a sister, a wife, a girlfriend — or if you just happen to like healthy breasts — this might be a subject worth discussing at halftime. There is one tough linebacker who’d appreciate it.

“Stefanie has gone home to be with the Lord,” Chris Spielman said in a statement released by WBNS radio in Columbus, where he co-hosts a radio show. “For that, we celebrate, but with broken hearts. I want to thank everyone for their support over the last 12 years. Together, with your help, hopefully we made a difference in this fight.”

We hear all the time about athletes who’d never win plaques for Father or Husband of the Year. They fail in the complicated tango between celebrity and sports, neglecting their human responsibilities in exchange for fame and an enlarged ego. But there are many more who quietly go about their business between the lines, before returning home and acting as good citizens, good partners.

Chris and Stefanie Spielman’s story might have been one of the first public examples of an athlete doing the right — dare we say, the manly — thing. Thankfully, and in her memory, it won’t be the last.

(by Lisa Olson)

What’s Up? How’s Your Wife?

This is my most special place in all the world. Once a place touches you like this, the wind nevers blows so cold again. You feel for it, like it was your child.

– Moonlight Graham, Field of Dreams

Ah..what to write.  When I run each night, the mind swirls with this thick soup of thoughts.  Some people have writer’s block.  I have writer’s neurosis.  I wish you could see the list of half written blog entries that I have yet to complete.  You will, but hopefully they will still be relevant.  I guess tonight I will have to address some recent inquiries to my email……

Funny how I still occasionally get an email (this week I got two) which asked how my wife is and why I don’t write about cancer anymore in my blog.  The short answer is that this blog was never intended to be about my wife’s cancer.  It was just a continuation of my personal thoughts on life.  My public memoirs if you will.

The long answer is that I can say that I feel so lucky that my wife is doing great, gets monthly shots and takes daily pills to make sure the cancer does not come back.  We are just about at the one year mark of five years of Tamoxifin treatments (20% done is quite an achievement).  The monthly shots leave a nice black and blue mark on my wife’s abdomen, my wife’s surgical scars are starting to fade, and occasionally we talk about her side effects, but I take my cues from my wife for the most part.  She’s ready to move on.  That said, we don’t forget.  We don’t forget the fears, we don’t forget the worries, we don’t forget those nights without sleep, and we don’t forget the months of surgeries.  Reading some of the blogs and talking to those who have just been diagnosed or who have wives reminds us of where we were and how much our lives have changed.  

Breast cancer is now a large part of our lives so much so that we have to escape.  No breast cancer walks or runs for me.  My runs are my way of running in honor of my wife, mom, mom-in-law, cousins, aunts, and friends who have all been struck by breast cancer.  Every night when I run I am reminded of our fortunate results, my wife’s strength, and those others who we have met through our ordeal.  By the way, of all the above mentioned, only my mother was over 50 when first diagnosed.  Yes, this is in light of the new panel study which says that women should now wait til 50 before having mammograms.   It is really a shame that we are now trying to cut back on preventive medicine during a big time for research and discovery.  Now is not the time to cut back when we are making so much progress.

Yes, breast cancer as a topic is all around us now and we just can’t escape it so we relish those moments when it doesn’t remotely come close to infiltrating our conversations or thoughts.   It is like my friend who works with juvenile delinquents on a daily basis.  He has told me that because of his job he doesn’t want to have children of his own.  This week I met with a gentleman who has been waiting a month and his wife’s surgery is right after Thanksgiving.  I had met him a couple times, but this week he just broke down.  His fears and concerns finally overwhelmed his facade.  His worries about his wife, his kids, the mounting medical bills, and all the uncertainty surrounding the outcomes finally came to a head.  It just took me back a year and I relived it all in one hour.  That feeling of hopelessness hit me like a ton of bricks.  I broke down with this man I barely knew.  I couldn’t tell him things would be alright as I knew it wasn’t what I wanted to hear either.  I wanted a path.  I wanted a path out of the mess.  All I could tell him was to bury himself into caring for his wife.  Focus on the task at hand.

That night I ran a long run.  Couple that encounter with an incident earlier in the morning where I had a woman faint in the elevator bank in my office bulding.  It turns out she was having a heart attack.  All she kept saying was “my babies, my babies” . Her predicament had me distracted the rest of the day until I had my conversation with that breast cancer husband.  Both incidences had me reeling.  They reminded me of how fragile life is.  All I wanted that night was to be alone with my thoughts so I could just make sense of it all.

Well I hope that explains it all.  Thankful this Thanksgiving? Yep I sure will be.  Happy Thanksgiving everyone.

Foghorns, 49ers, and Fall

Life is a roller coaster ride
Time turns the wheel and love collides
Faith is believing you can close your eyes and touch the sky
So shine while you have the chance to shine
Laugh even when you want to cry
Hold on tight to what you feel inside and ride

Lyrics to “The Ride” by Martina McBride
Kicking off a New Season in San Francisco
Kicking off a New Season in San Francisco

Today is officially the last day of summer and the first day of Fall.  A beautiful time for me and a wonderful time in San Francisco.  I believe if Mark Twain had stayed for the Fall, his famous quote would have read, “The coldest Winter I ever spent was the Summer I spent in San Francisco, but the warmth of its Fall Sunny Days and Foggy nights give the city it’s charm the makes it so beautiful.”

This is now the time to enjoy its 40 hills, its 49 square mile (some say its officially47) and some of its over 3000 wonderful restaurants.  Tourists are gone, the weather is at its best, and if you want to venture up to the Napa wine country, it is time to see the Fall crush of the grapes which many say is the best time to visit.

Someone asked me recently, “What is with the midnight runs?” They really aren’t at midnight, but I have to admit they are later than most people run.  They are also somewhat of a sore point with my wife as she doesn’t like my running in dark clothes with no identification on me.  The truth of the matter is that while I am running sparsely populated streets at night, I do run a pretty regular route, I run on sidewalks and even some of the parking valets around know my schedule well enough to tell me if I’m running late, early or slow.  Last night I was even able to tell the valets at Spruce Restaurant the score of the late night ESPN game.

Running the streets of San Francisco is where I do my best thinking.  Sometimes those nagging issues you’ve been dealing with for days or weeks just somehow find a solution at mile #2 when you’ve got that lactic acid building  in your leg, but you stretch it out running up the steep incline on Upper Fillmore imagining you are Rocky only to find Gino’s liquor store and the last patrons of Jackson Fillmore coming out of the trattoria with sated appetites instead of a big statue at the top of the stairs overlooking Philadelphia.

It is my favorite time to run in San Franciso.  The end of summer in San Francisco usually means our hottest days are coming.  It  means nights filled with low lying wispy fog that drenches your face during your runs.  It also means those deep fog horns blaring throughout the night.  During the day the fog blows out to sea and the days are filled with 80 degree weather. My dad used to call this fog, San Francisco’s natural air conditioner.  It is so refreshing and almost is like our Spring in many ways.  In fact with baseball season ending and football season beginning, it is like a whole new season, especially in San Francisco, home of the 5 time champion 49ers.  Growing up going to games with my dad it was the time of hope and new beginnings.  To me it still is that way.  Now it’s with my own son.

Running the streets of San Francisco, with foghorns blaring I just smile to myself thinking about the great time I had at the ballpark with my son earlier in the day, introducing him to the people who have sat around us in the same seats for 30 years.  The same people who gave me cookies and milk when I was his age now give them to my son.  My son has no clue how he’s just living my life from 30 years ago.  Cheering on the 49ers, high fiving strangers after a great play and eating terrible food that give you a stomach ache when you get home.   It’s a cyclical pattern in life and yet it is a new beginning.

I can look back 30 years, but these days while I celebrate a year since my wife’s breast cancer surgery, I also look back a year when I was playing nurse to my recovering wife.  It still isn’t over with her pending surgery coming.  This will again hopefully be the last surgery for a while.  This is one cycle I don’t want to have repeat itself.  A year can make a huge difference both good and bad.  There is no doubt in my mind that my wife and I are stronger than we were before.

So back to my running, I’m not an extremely spiritual person as  I’ll go to church for special occasions, but running has been my place of worship and my confessional.  Each run is my own search for the truth.  I don’t run with others, justw ith my thoughts.  It is where I ask myself if I truly believe. It is where I push myself and question my actions and where I look for the answer to many of life’s questions.  It is my solitude that allow me to begin a new day every day with renewed energy.  There is a running commercial where the person has to get through that first mile before they reach that special runner’s place.  Yes, that the runner’s high.   It is true for me like many.  I feel better after an exhausting run that before I left.  San Francisco has a part in that.  It is that friend that is with me on every run.  Its streets are the paths in life that I go over time and again.  Yes Fall is here in San Francisco and my motivation is higher than ever.

Another Milestone of Thanks on 9/9/9

“I won’t give up if you don’t give up” – Train from “Calling All Angels”

I want to give a big thank you to all friends, family and business associates who helped my family deal with my wife’s illness this past year.

Today was just another day of running around the house getting the kids out of bed, reminding them to put their clothes away, brush their teeth, comb their hair and rushing them out the door to school.  Hundreds of thousands of families repeated that same ritual this morning without batting an eye. Kids waving at me in my rear view mirror as I drove off to work just put that smile on my face that puts one in a happy place.  These small things we take for granted, but I’ve learned to cherish these moments which are the strong fibers in the fabric of our lives.

Midway through the day I was running through my emails, my Facebook updates, and my Tweets as I ate my lunch and someone wished me a “Happy 9/9/09”.  The date in slightly different formats had two meanings for me.  Exactly 10 years ago my wife went into labor with our first child.  The hospitals were then packed on 9/9/99 with tech geeks in the area wanting to have their babies on that day.  Incidentally my wife didn’t eventually give birth until 9/11 which gave my son an equally auspicious birthday. 

More recently, the date marked exactly a year since I spent one of the longest days in my life at the  hospital as my wife went through a 6 hour surgery to have her cancer removed.  As I responded to a few emails including one from the mother of my son’s classmate (her husband is dying of cancer) I could only think once again of how fortunate we are.  I can only say thank you so many times to the wonderful friends who supported us physically with meals, carpools, rehab walks, babysitting,  and even just a nice cup of coffee as well as emotionally with advice, cards, flowers, and prayers through a very tough time. All of those efforts allowed us to get back to the living our normal every day lives without hardly skipping a beat.  A big thanks also goes out to all our new friends who met as we entered into this new community in our lives who helped us better understand what we would be going through and prepared us for the months of hard work. Even more to those old friends I grew up with who gave their unconditional support even though we hadn’t seen each other in decades and barely knew my wife.

Why the video in this post?  “Calling All Angels” by Train is one of those songs that has been in my iPod for years and was listened to occasionally, but this past year it kept pushing me through some of my long night runs (over 1100 miles since the night of that surgery), inspiring me to keep going until it became a big part of my mantra run.  I felt like I was running the streets of San Francisco calling for angels to help and they did.  Incidentally, Train is coming out with a new album called “Save me San Francisco” (the band was formed here) and their hit song, Hey Soul Sister, is a catchy little tune that I think captures the energy of  the sisterhood of women suffering from breast cancer.  The fight against breast cancer is an intense one wrought with emotion.  The sisterhood is strong.  The women I met as I searched for answers showed me how a strong community atmosphere can be so supportive.  The song also captures for me my love for the woman who has been both my hope and my inspiration over the last year.

Well when I got home tonight all I could do was give my wife a big hug.  The date had hit her in the middle of the day too.  We smiled as our kids wondered why mommy and daddy were so happy that they had to give each other a big embrace in the kitchen.  We just told them we are just very very lucky people.  Only a year gone by and the ability to look back and smile and turn our heads to the future is a good thing.

Some Mondays Don’t Go as Planned – A Loving Fight

“It Ain’t Over til It’s Over” – Yogi Berra

Gifts from our UCSF Decision Services group
Gifts from our UCSF Decision Services group

As I start this entry we are waiting for the nurses as my wife waits on what we hope will be her final surgery, almost a year to the date of her original breast cancer surgery.

This summer has been a rough one with my father-in-law in the hospital on the opposite coast for 6 weeks fighting a staph infection that laid him up with severe back pains and a high fever which made him hallucinate.  Trying to entertain kids on their annul summer visit while juggling a couple hours in the hospital each day was not a fun chore for my wife.  On top of that her longtime neighbor and family friend died of lung cancer while we were visiting.  My wife loves going home to visit friends and family, but this time despite the pending birth of our new nephew, I think she was happy to get back home.  She hadn’t even gotten the chance to mention that she was about to undergo her 4th surgery in a year.

Four surgeries in a year is not a badge of honor and at the same time it is not even close to the amount of surgeries many people have gone through with breast cancer, but looking back on it I still wouldn’t wish it on anyone.  A total of 22 hours in surgeries so far and the 4th only expected to be 90 minutes and I can only imagine the toll all the anaesthesia takes on the brain.  Maybe its old age but I can already sense some memory issues with my wife.  She’s been through a lot and I have all the respect for her approach to this last one.

This morning our kids were cranky about having to get up early and were giving my wife a hard time.  It really didn’t make me feel good to have to pull each of them aside and remind them how lucky we are.  For two young kids who have had nothing but cancer and hospital visits all around them for the last two years, they instantly knew this was not the time to be acting up and realized how fortunate to have what they have.

(Move ahead 15 hours)

Well my wife had a bit of a temperature today and they didn’t want to operate on her for fear she might be getting sick and there could be a resulting infection.  They knew my wife and I would be disappointed when they broke the news.  We had waited 4 months for this date, but now have to wait more.  After such a hard morning  getting there it was a bit disheartening.  I could see my wife was bothered.  I was bothered too.  A little for me and a lot for her.  Tonight I just felt I had to apologize as I think she could tell I was not happy with the delay as well.  We just want to get all of this overwith.  One last surgery we hope.  Now the wait again.  A wait for another surgery date.

We can’t be angry though.  My wife and I tried to console each other and subtly reminded each other of how lucky we are to be where we are today.  It hasn’t been easy and this wasn’t going to end easy either.  We’d been patient this far and couldn’t take this personally.  It is so easy to lose your cool when you can taste that chance of moving to the next step.   What’s a few more months…heck we still have to wait a few more years to be considered cancer (and Tamoxifen) free.  The cancer clinic itself has been great.  Just a couple weeks ago during her pre-op appointment they gave her a framed article from the Wall St. Journal that she had helped with (she took photos with the physicians) as well as a huge bouquet of flowers.  They really care for her well-being and would rather err on the side of conservatism.  Getting to know people on a first name basis makes things so much easier on the patient.  I remember seeing them having to look at the charts to remember my wife’s diagnosis and name.  Unfortunately they know it real well now, but that sterile feeling of being “just another breast cancer statistic” is gone.  Being able to ask your sugreon about their kids and how they are liking their new school just helps to ease the tension.

On a side note, our son’s classmate’s father who was given only a few weeks at the beginning of the summer is still holding on.  He is weaker now, but he really wants to see his kids start the school year.  It will help them and I think he will make it to that goal.  It is really sad, but in a small way having their sons back in school with such a supporting community will make the eventual loss not as lonely.  Just last year this happened with another schoolmate when they lost their mother after her six year battle and the school rallied to make meals all year long.  I had a chance to see the father at the pool this summer and he said it had been a long year but it taught him about patience and forgiveness with his two young boys. They had lived with this cancer with their mother for 6 years and he said the highs and lows were rough.  This year was very numbing without her. Knowing that my wife was in a similar situation, he just put his hand on my back and let me know I could talk whenever I needed.

Yep.  Patience.  Practice before and after.  Take one step at a time. There is no rush when it comes to cancer because it is a long road.

Shared Decision Making for Breast Cancer Patients

Patient Doctor Consultation with Decision Services Representative on hand
Patient Doctor Consultation with Decision Services Representative on hand

In today’s Wall St. Journal there is an article on the Decision Services offered at my wife’s breast cancer clinic, the Carol Franc Buck Breast Cancer Center at UCSF: http://online.wsj.com/article/SB10001424052970203674704574328570637446770.html#articleTabs%3Darticle

Decision Services is a great resource when you are overwhelmed with all the information and emotions when first diagnosed. At the time I thought nothing of the services. Now that I look back on it, the resources and advice for helping to manage our experience were invaluable:

– My wife and I watched many DVDs, pamphlets and other articles together,
– Prepared countless questions for our visits
– Reviewed stats together
– Went over online research made available to us
– Reviewed our notes of our meetings and prepared follow up questions

In this information age, services like this are so important to have. Patients have so many questions and thoughts running through their head that they sometimes miss what is being said to them, forget to ask the questions that they wanted to ask and feel frustrated and left out. Many times my wife would hear one thing and I would hear another. We’d just review the notes taken by the notetaker and we’d have our discussion resolved. I could even use this in my everyday life.

The service provided interns who took great notes during our visits before, during and after our visits to make sure we understood everything that was said in our visits and to help us get more informed answers from my wife’s doctors. We often submitted laundry lists of questions before each visit and they were prepared with their answers before we came in for each appointment. We all know how we forget what they tell us during those visits because we are so worried, but they provided great notes from our appointments.

Yes, that is my wife featured in the article’s photos.

As we reach the aage of health reform in the US, services like these will become more invaluable as we help put some control back in the care of the patients. There are many early adopters of such services such as the Palo Alto Medical Foundation, The Wellness Community, the Mendocino Cancer Resource Center, Breast Cancer Connections, the Humboldt Community Breast Health Project, and (abroad) the Edinburgh Cancer Centre.

The entire team at the Breast Care Center, led by Laura Esserman, is blazing new trails in health care. Check out https://www.breastcancertrials.org/bct_nation/home.seam and http://www.athenacarenetwork.org/ for other innovations from this group!